Mare Bear



My name is Mare Bear and I was born with Rett Syndrome.  I am in the 8th grade and 13 years old.  I like my horse therapy at the Ride On Center for Kids, but have had to take a break due to seizures.    I am also a Pioneer in American Heritage Girls.  My squad is a fun group of girls and we loved getting together to play and earn badges.   My favorite thing to do is go swimming.   I also love music and dancing to the beat!


We love hearing from other family of children living with Rett syndrome.  We have never met another family that has a daughter with her same mutation.  Marebear's Mutation is P152R.

Our life may be difficult, but we know our daughter is Living with Rett syndrome, and she is a determined little girl.  She suffers from Seizure, and has a feeding tube.  Her foot has dystonia and she had surgery this summer to correct it.  She is in a wheelchair, but is regaining her walking ability slowly. She is sweet, kind and loves life. 



Check out this website to learn more about Rett Syndrome!
http://www.rettsyndrome.org/




If you would like to donate to Marebear strollathon page in  honor of Marebear to help International Rett Syndrome Foundation find a cure for Rett Syndrome Click Here.