Today is Leap year, and Leap year is rare, but do you know what else is rare?
There are many types of rare disease that effect over 1 million people. That is why today is national Rare Disease Day.
In Honor of my daughter, Mare Bear I wanted to bring awareness to those effected by rare disease, like Rett Syndrome.
Rett Syndrome...
is a developmental disorder. It is not a degenerative disorder.
causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.
symptoms appear after an early period of apparently normal or near normal development until six to eighteen months of life, when there is a slowing down or stagnation of skills.
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I have said this before on my blog, "Sometime you pick a cause and sometimes, like in our case, a cause picks you."
Information about Rett syndrome found at http://www.rettsyndrome.org/content/blogcategory/17/1105/
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