My name is Mare Bear and I was born with Rett Syndrome. I am in the 8th grade and 13 years old. I like my horse therapy at the Ride On Center for Kids, but have had to take a break due to seizures. I am also a Pioneer in American Heritage Girls. My squad is a fun group of girls and we loved getting together to play and earn badges. My favorite thing to do is go swimming. I also love music and dancing to the beat!We love hearing from other family of children living with Rett syndrome. We have never met another family that has a daughter with her same mutation. Marebear's Mutation is P152R.
Our life may be difficult, but we know our daughter is Living with Rett syndrome, and she is a determined little girl. She suffers from Seizure, and has a feeding tube. Her foot has dystonia and she had surgery this summer to correct it. She is in a wheelchair, but is regaining her walking ability slowly. She is sweet, kind and loves life.
Check out this website to learn more about Rett Syndrome!http://www.rettsyndrome.org/
If you would like to donate to Marebear strollathon page in honor of Marebear to help International Rett Syndrome Foundation find a cure for Rett Syndrome Click Here.
